Courtagen is excited to announce that it has partnered with the United Mitochondrial Disease Foundation as part of a new pilot program designed to expand access to genetic testing for patients with mitochondrial disorders who have been unable to access testing due to financial barriers.
Each quarter, Courtagen will provide one complimentary mtSEEK® test or nucSEEK® test to a patient who meets the qualifying criteria. UMDF will randomly select a physician from those who have registered for the program, and the selected physician will be forwarded information about ordering the free test on the patient's behalf through Courtagen. The physician will then alert the patient if they are selected to receive the free genetic testing services. This is a great opportunity for patients who are otherwise unable to access the benefits of genetic testing because of financial hardship or insurance limitations.
How to QualifyTo qualify for the UMDF Genetic Testing Program, a patient must meet the following criteria:
- Have a confirmed or suspected diagnosis of mitochondrial disease based on a physician's clinical assessment
- Have never had genetic testing done previously
- Be registered in the Mitochondrial Disease Community Registry (MDCR). Register now
- Have a financial barrier to receiving genetic testing (i.e. lack of insurance, insurance that does not cover testing, unable to afford the test).
How to Participate
In order to participate in the UMDF Genetic Testing Program, patients and physicians both need to register.
Patients must also be sure to register in the MDCR.
Physicians interested in participating in the program must register by Noon EST/EDT on the following days.
September 29, 2016
December 29, 2016
March 30, 2017
June 29, 2017
Physicians only need to register once to be considered for all of the above dates.
UMDF is a nationally-recognized non-profit organization whose mission is to promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.
UMDF provides patient and family support to its members, updating them with the latest treatment advances and information with its quarterly newsletter and providing opportunities to meet other members via local chapter meetings. The organization hosts an annual international symposium that brings together the best physicians and researchers for patients and family members to gain valuable information. UMDF has also provided more than $13 million in research grants.
The UMDF Genetic Testing Program is part of UMDF’s Roadmap to a Cure initiative, which is committed to finding treatments and cures for mitochondrial disease requires faster and more accurate diagnosis for patients. Courtagen is proud to be a part of this program and help more patients and families access the many benefits of genetic testing.